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DiscussionLeg Weakness and Mobility Issues
Autoimmune Diseases | Last Active: Oct 28 8:17pm | Replies (137)Comment receiving replies
Replies to "I am on IVIG and take Panzyga. My balance problems have gotten a lot better. As..."
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@artemis1886
How long and what dose of IVIG you’ve been on?
I just started last week 4/3/26 60g, supposed to be twice a month.
I’m not sure I’m feeling any different, regarding regaining my muscles strength, it’s tone, which is completely gone, casing severe spasms increase I’ve been suffering from for the past three years leading me to the state where I’m now, became bedridden mostly with the exception of the PT in home 3 times a week.
Not sure what to expect from IVIG, since I’ve received my first dose last week my muscles got even weaker. Although I’ve been taking benzos for the past three month prescribed for the muscles spasms initially, first Xanax then switched to Clonazepam due to the sever X side effects, drug induced Dystonia, muscles tone Disoder, it’s total loss. I’m desperate to get off it, although it seems almost impossible right now due to the horrific rebound, withdrawal it causes when I’m trying to taper it.
Not sure what to do at this point, feeling hopeless.