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← Return to Brinsupri experience after 3+ months
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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 13 hours ago | Replies (89)Comment receiving replies
I have been on Brinsupri for 5 months now. Started on 25 mg and within a month I developed a body rash all over my trunk. Coughing had intensified to the point I was exhausted after each coughing session. I chose to cut in half as to not give up completely on the drug. Rash slowly went away and coughing reduced considerable with my typical off and on coughing jags throughout the day. When I would lay down to cough, they were very hard coughs that produced a lot of phlegm. 1 month ago I thought my body might be use to the drug better and I raised the dose to the full 25 mg. My rash has come back completely. I saw my Stanford doctor today and he looked at my rash and told me to reduce it back to 1/2 dose. I’m feeling disappointed because I was excited to start the drug in hopes of less exacerbations. Hopefully half a dose will still help.
Replies to "I have been on Brinsupri for 5 months now. Started on 25 mg and within a..."
@patti55 You have a smart doctor. My pulmonologist, who is frequently involved in clinical trials, told me she read ALL of the test reports/research results. According to her, it appears from the clinical trials that 10mg is as effective for most people as the 25mg, but with fewer side effects.
She has only prescribed for a handful of patients (not me) who were having 5 or more exacerbations per year. When I see her in May, we are reserving part of the appointment to talk about how Brinsupri seems to be working in the real world. She is a strong supporter of Mayo Connect and wants to hear how our members are doing and share how her patients are responding.
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@patti55 Interesting to know that splitting them is an option. Hoping it works for you.