← Return to Memory loss headaches and anxiety no explanation 18 years old

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@jasonruiz731 Where in the north are you, may I ask? I would recommend Mayo in Rochester if you're close to that. Or, there's one in Florida, which I went to years ago. If you were near me (SC), I would suggest MUSC and/or Duke in NC. Those are two top rated hospitals that offer so much. Johns Hopkins, like you mentioned, might also be a good choice. You said your Dr's think it could be Functional Neurological Disorder - but, have they pursued any path ahead or course of treatment (besides psychiatric help)? Oftentimes, sadly, we have to be our own advocates and keep pushing for answers and/or better quality of life when we know there is something wrong inside our body. You alone know how you feel and that it's giving you red flags, and moreso that you're not willing to live in that condition. It's going to take some fight, but it'll be worth it once things start to improve and can be managed. Right now, though, you have no answers. If where you are is not giving them to you, then you might need to look outside of your borders. One of the moderators here - Colleen, maybe? - just posted a resource about Mayo program, but I'll have to see if I can find it and repost for you. Have you seen your primary Dr and asked his/her opinion? Might need to start at ground zero and see if they could make an additional referral somewhere else. Otherwise, you are an adult and you have the right to make your own medical choices. This might sound a little harsh - not trying to be - but, you need to somewhat tune out your parents' voices in regards to this if they're not being helpful. Utilize them, though, yes!! Talk to them, share your struggles if you're willing and explain that you're not OK and need to find out what's going on FOR YOU. It's your life, not theirs. I'm dealing with a plateful myself, and I've had to do this on my own, so I know the struggles. I've had to jump from one Dr to the next and finally I get somewhere and then something new gets thrown on top. It's ever changing, but all good. Have you considered (or maybe you already have) reading medical journals? I've found tons of helpful information there because they document cases that many people don't hear about with "strange symptoms" and rare disorders (not saying yours is). Just a thought. I'm going to be thinking about this and I'll see what I can dig up. In the meantime, hold your head high and don't give up! You are supported here.

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Replies to "@jasonruiz731 Where in the north are you, may I ask? I would recommend Mayo in Rochester..."

@rivermaya34
Yes my primary has told me that he doesn’t think that it’s anything serious which I know that it’s something
I live in the northern Virginia dc area thank you for your support I keep going to ers hoping they do something but have found that it’s ineffective so I need a new pathway and it’s hard trying to advocate when you don’t feel well my nuerologist really just told me to do cbt that’s it thank you if you could repost the moderators comment thank you also I have no idea how to make appointments