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Metastatic Breast Cancer: Really want and need to connect with others
Breast Cancer | Last Active: Sep 3 11:21pm | Replies (60)Comment receiving replies
@wandering
Congrats on 12 years! That is encouraging. I was diagnosed in Nov 2025 and am very worried and need to live as long as possible. I have a special needs adult son who does well in the environment I have created for him, but would do poorly in a group home. I need to be here for him as long as possible.
I start my 3rd cycle of Kisqali and fulfestrant soon, and so far side effects have been manageable so that's good.
Replies to "@wandering Congrats on 12 years! That is encouraging. I was diagnosed in Nov 2025 and am..."
@sthrush I originally was diagnosed in 2012 TNBC but it came back in 2020-21. All metastatic cancers are Stage 4. Re: sleeping - I also use 10 mg melatonin. I rarely have trouble getting to sleep but I need to use the bathroom multiple times during the night. When I get up I drink a couple sips of “sleepy time “ tea and that help me fall back to sleep. Also a use a clock radio on low volume. Just enough noise to block out my tinnitus and wild and non stop thoughts. If I want to remember something I write it down so it can leave my brain and I will not obsess over it.
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@sthrush
The longer you can stay in treatment the better. I don't think the medication I am on (Trodelvy) has been around more than 3 years. I really like it. I have had some side effects (loss of hair, diarrhea). Manageable. Glad you are able to have your son live with you. I imagine he feels comfortable with your help and guidance.