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Memory loss headaches and anxiety no explanation 18 years old
Brain & Nervous System | Last Active: Feb 17 7:52pm | Replies (26)Comment receiving replies
@rivermaya34
I have had 2 nuerologist opinion they say that there’s nothing wrong with my scans at all I have had no seizures or strokes have done CT’s and mris they say it shows no abnormalities
The headaches have mostly stopped being severe but I’m left with extreme fatigue they think it’s functional neurologic disorder but I don’t know I’m running out of options and ideas I’ve never been in a car accident no they haven’t considered a menginnoma they say it comes back normal so they don’t have suspicion of it I don’t have any trauma this all just sort of happened out of nowhere I don’t know what to do anymore I’m so young but dealing with so much because of my age they automatically think it’s a psychiatric issue I live in northern if you have any idea or recommendation of where or what to do I have no idea of how to go to a research hospital or have them evaluate me I’ve been to the university of George Town they found nothing wrong so I don’t know anymore 🙁
Replies to "@rivermaya34 I have had 2 nuerologist opinion they say that there’s nothing wrong with my scans..."
@jasonruiz731
Also my parents have been losing their patience with me and that’s been hard on me and them I just want a answer soon and a treatment if there one or at least manage this
@jasonruiz731 Where in the north are you, may I ask? I would recommend Mayo in Rochester if you're close to that. Or, there's one in Florida, which I went to years ago. If you were near me (SC), I would suggest MUSC and/or Duke in NC. Those are two top rated hospitals that offer so much. Johns Hopkins, like you mentioned, might also be a good choice. You said your Dr's think it could be Functional Neurological Disorder - but, have they pursued any path ahead or course of treatment (besides psychiatric help)? Oftentimes, sadly, we have to be our own advocates and keep pushing for answers and/or better quality of life when we know there is something wrong inside our body. You alone know how you feel and that it's giving you red flags, and moreso that you're not willing to live in that condition. It's going to take some fight, but it'll be worth it once things start to improve and can be managed. Right now, though, you have no answers. If where you are is not giving them to you, then you might need to look outside of your borders. One of the moderators here - Colleen, maybe? - just posted a resource about Mayo program, but I'll have to see if I can find it and repost for you. Have you seen your primary Dr and asked his/her opinion? Might need to start at ground zero and see if they could make an additional referral somewhere else. Otherwise, you are an adult and you have the right to make your own medical choices. This might sound a little harsh - not trying to be - but, you need to somewhat tune out your parents' voices in regards to this if they're not being helpful. Utilize them, though, yes!! Talk to them, share your struggles if you're willing and explain that you're not OK and need to find out what's going on FOR YOU. It's your life, not theirs. I'm dealing with a plateful myself, and I've had to do this on my own, so I know the struggles. I've had to jump from one Dr to the next and finally I get somewhere and then something new gets thrown on top. It's ever changing, but all good. Have you considered (or maybe you already have) reading medical journals? I've found tons of helpful information there because they document cases that many people don't hear about with "strange symptoms" and rare disorders (not saying yours is). Just a thought. I'm going to be thinking about this and I'll see what I can dig up. In the meantime, hold your head high and don't give up! You are supported here.
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@jasonruiz731
I’m also running out of money so I really have almost no options