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Would like to connect with others with metastatic liposarcoma

Sarcoma | Last Active: Mar 21 5:30pm | Replies (20)

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Profile picture for fwaynes @fwaynes

Hello I was diagnosed with Leiomyosarcoma (metastatic) in spring of 2024 and started treatment of the below in mid-July. I feel the regiment below did a great job in reducing size and was schedule for 8 treatments scheduled every 3 weeks. I was only able to complete 6 treatments as the Doxorubicin is very harsh nicknamed the (RED DEVIL). I finished my 8 week cycle with trabectedin (YONDELIS). This a maintenance treatment I am currently on. I took a 9 month break after the 8 week treatment plan. I started the maintenance plan back in 10/2025 and still on that plan. Isaw huge reduction in size of tumors during first treatment. Now is more stopping growth.

dexAMETHasone (DECADRON)

(HCC)
Doxorubicin (ADRIAMYCIN)
(HCC)
fosaprepitant (EMEND) injection 150

Leiomyosarcoma (HCC)
heparin, porcine (PF)
palonosetron (ALOXI)
trabectedin (YONDELIS) or

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Replies to "Hello I was diagnosed with Leiomyosarcoma (metastatic) in spring of 2024 and started treatment of the..."

@fwaynes
Thank you. I hope your success continues. That is good news. I am really afraid of doxorubicin. I do not want to be so sick I cannot do anything since the chances of it helping with the liposarcoma is something live 30%. Do you mind sharing more about what you experienced from the doxorubicin?