@jeff97

My rheumatologist and I discuss "possibilities" but in reality, there is no plan to ever stop my Actemra infusions. I'm into my 8th year of being on Actemra, I started with injections every 2 weeks before switching to weekly injections. Now I do an infusion every 4 weeks but I have gone almost 7 weeks between infusions.

I have a general sense of how long I can go without an infusion. It varies from 4-6 weeks to actually do my infusion but my rheumatologist doesn't want me to go more than 6 weeks.

Sometimes I feel like I don't need the infusions anymore. We talk about stopping Actemra but my rheumatologist only says that I don't need to stop Actemra. My rheumatologist would let me stop Actemra but he doesn't understand why I would do that. That is in contrast to how my rheumatologist felt about me being on Prednisone. When I was taking Prednisone --- it was like every visit emphasized how to get me off Prednisone and how I could NOT be on Prednisone any longer. I didn't know how I would ever be able to taper off Prednisone.