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Please help seronegative inflammatory arthritis

Autoimmune Diseases | Last Active: Feb 20 1:43pm | Replies (48)

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@suysuy Oh my goodness what a story! 5 years! Where is your swelling and pain ? Cannot believe you had to go to a different country to get help! I have literally been contemplating the same. The gaslighting, the dismissals despite visible joint swelling and deterioration, it’s horrific! I even tried to get my joints recorded twice by nhs rheum and took a witness and he said he couldn’t see it! I am psychologically disturbed by all of it! How are you now ? Thank you for replying

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Replies to "@suysuy Oh my goodness what a story! 5 years! Where is your swelling and pain ?..."

@sas2012 Thank you for your reply, really appreciated! I've been told it's due to postpartum, then told I'm just doing too much (working full time with a little one and the household chores) and hurting my hands and feet, then told it must be pychological!! At that point I felt like a 1950's housewife getting blamed of hysteria!
I had slight swelling on my hands, fingers mostly and both my feet but everytime I tried to prove it to a healthcare professional it looked ok for them so I was dismissed.
Then I got pregnant again and all my symptoms dissapeared! Around that time AI was a new hype so I asked what would be the diagnosis with all my history and that mighty machine stated that it looks like a chronic autoimmune disease as they tend to cease while pregnant. When the second baby was around 4 months we went to Turkey and asked this to the rheumatology specialist there, he said it's the perfect test!
Now waiting for April to be seen here in UK and complain that the sulfasalazine doesn't work and I need better care.
How are you coping? I hope they treat you well now.