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Profile picture for rivermaya34 @rivermaya34

@jasonruiz731 Ugh - your struggles sound so horrible! A lot of my struggles started at 19 (I'm much older now), so just know that health struggles are indiscriminate of age. I'm so sorry you're dealing with so much ... my humble opinion - a second (and even a 3rd, if need be) neurologist opinion is necessary. Not saying what you're describing is out of another Dr's bounds, but it really sounds more neurologic than anything else - I'm not an MD, so please make sure to seek a Dr rather than take my word for anything. Standing back, that's what I'm observing. Four questions for you - 1) Were you ever in a car accident? (bc of memory loss) 2) Did they ever do a CT scan? (diff scans show diff things) 3) Have they ever considered a meningioma? (a friend of mine had this) 4) Sorry, this one might be personal - merely for your own personal reflection - did you ever experience any sort of trauma that could have formed memory blocks? (don't answer this one here) ... things to think about. Also, I'd say you can't lose anything by pursuing research hospitals for their opinion. Ugh. Sure hope someone can figure this out soon and you can receive relief. Hang in there! And, you've come to the right place for lots of support and great experiences / perspectives - I applaud you for that; it helps the rest of us, too.

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Replies to "@jasonruiz731 Ugh - your struggles sound so horrible! A lot of my struggles started at 19..."

@rivermaya34
I have had 2 nuerologist opinion they say that there’s nothing wrong with my scans at all I have had no seizures or strokes have done CT’s and mris they say it shows no abnormalities
The headaches have mostly stopped being severe but I’m left with extreme fatigue they think it’s functional neurologic disorder but I don’t know I’m running out of options and ideas I’ve never been in a car accident no they haven’t considered a menginnoma they say it comes back normal so they don’t have suspicion of it I don’t have any trauma this all just sort of happened out of nowhere I don’t know what to do anymore I’m so young but dealing with so much because of my age they automatically think it’s a psychiatric issue I live in northern if you have any idea or recommendation of where or what to do I have no idea of how to go to a research hospital or have them evaluate me I’ve been to the university of George Town they found nothing wrong so I don’t know anymore 🙁