15 months ago I had 20 rounds of radiation for the prostate and prostate bed, and about 3 months or more before that, I was put on an ADT regime using Lupron.
I have an appointment with my Radiation Oncologist next week follwing the last blood analysis which has indicated a rise in my PSA from .001 to .003. Unfortunately, I have been a bit timid (and unprepared) at appointments with my Urology Oncologist, who indicated the recent change while also mentioning a rise in testosterone. I can see the effects of that increase in my penis and scrotum. This clearly looks like resistance has set in.
I hope not to have to have more radiotherapy, and that a new ADT treatment option is available. We shall see.
If anyone has experienced this I would welcome hearing your story.
As for the side effects of ADT itself, I have found it to be challenging but manageable. It's manageable because I'm retired and can get out of bed when I'm ready. [Yes, fatigue has been a side effect that limits my physical activity. ] The hot flashes seem to vary from day to day, and I'm now trying to figure out whether my sugar and/or salt intake makes them more frequent. Thanks