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Ehlers Danlos Syndrome (EDS) Treatment in Arizona?
Bones, Joints & Muscles | Last Active: Feb 15 12:05pm | Replies (14)Comment receiving replies
@jackbartlett123 My son was diagnosed with local HSD at Mayo. I suspect I am similar but not diagnosed. Your post caught my attention because hydrodissection is recommended potentially for my newly diagnosed superficial peroneal mononeuropathy. I do not know why I have this condition. I have thought it might be from a car accident 2021. After watching my son deal with pain for years they initially thought was ulnar nerve entrapment I have to wonder if something about my makeup (HSD) is contributing. Have you had hydrodissection?
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@maryannt70 Im very sorry to hear all that. I share a similar hereditary situation I think, I believe I inherited this from my dad. He had similar quirky musculature problems as I do, and he died of a rare connective tissue cancer at 56 called malignant fibrous hystiocytoma. That was in 2005, I think that cancer is called something else now, but it all kinda tracks.
No, I have not gotten the treatment yet. I have been unemployed for a few months and have had to put my hydrodissection goals on hold. The provider that got be hooked on the idea is named Dr Tina Wang out in California. I’d love to find someone local to Atlanta, but this is a video of one of her talks. If the link below doesn't work it’s called
Fascia Science: Its Relation to EDS & HSD with Dr Tina Wang - 2024 GLC
If you end up getting it I’d love to know if it works!