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Living with PN, do you find yourself retreating from life?
Neuropathy | Last Active: Mar 5 10:44am | Replies (144)Comment receiving replies
Hello, quietriver (@quietriver)
Thank you! You've presented me with a fabulous balance tutorial. I intend to print out and save your post. Not only do you offer specific practices, but the sum-total, the message of your post is Never Give Up! I find that so heartening. I need to have words like yours at the ready whenever so determination begins to sag––and sag it will do!
I first began to experience balance difficulties way, way back in the early 2010s, shortly after I retired. I'd not been diagnosed with anything then. I chalked my wobbly balance up to "getting older." I wasn't diagnosed with PN until the summer of 2023, only three years ago. Still, I was able to manage my less-than-perfect balance. I believe that was because my legs were still strong (thank to years of long-distance running).
But in the spring of 2024, I contracted a nasty sepsis infection, which left me mostly bed- and recliner-ridden for 14 months! It was those chiefly inactive 14 months that sapped my legs of all their strength. It's working to rebuild that lost strength that is my No. 1 exercise preoccupation these days––and oh my, oh my, what a long and tedious process this is! I am learning patience in a way I'd never learned it before.
I wish success well and everlasting determination in your work to keep yourself well, @quietriver.
Here's wishing you the very best!
Ray (@ray666)
Replies to "Hello, quietriver (@quietriver) Thank you! You've presented me with a fabulous balance tutorial. I intend to..."
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@ray666 this is Quietriver again I have something for you to think about. The program I put out I call the Robert L simonds Brain recovery program. It seems that as folks age they use their Brain less.and the less you ues it the worse it gets.
I guess you have to think like a New Born Their brain is not programed so every thing they see and do is new to them and that little brain stores it Older folks are like that new born except their brain was programed over the years but sits unused in their head as they don't want to use the memory they accuirs ed and it is going to waste that includes their Balance ability to walk, to read Write talk think and remembering how to walk properly. So like a new born they have to reprogram their memory to work again just like a new born does to start their life.
Folks remember sliding their feet acrss the floor is a sure way to fall and lifting your feet and walking proplerty like they used to gives them back back your balance and confidence they have lost. Start playing games going out and socializing, Don't just sit there. reading a book. The older folks I know sitting in nursing homes are just sitting lookiing at eack other and feeling sorry for them selves and are just waiting to die. I went into one nurseing hme and said Hi folks; you know I love to sing will you join me and almose every one did and we sang You Are My Sunshine. Many knew every word and wer good singers and I got them to tell about themself, where they live and so on. a few mo later a few were socializing the rest returned to their self pitty. I sugested to the home they get a activity director and help these folks live out the lives iin happiness. That also failed. The homes think about the big dollar and not much else. thought that nursing home did start getting people to come in and entertain their live in once a week.