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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 13 hours ago | Replies (89)Comment receiving replies
@scoop
Well for me every day is alike. Same amount of sputum every day. My pulmo warned me that for some people Brinsupri does not work. I asked about gradual or subtle improvements over time since it would be unlikely that suddenly in 4 or 6 months it works! By the way, AI says 6 weeks is about when it can kick in (or longer). So far after 3 weeks I notice no improvement at all. I should think one might notice some very small indicator by now.
Replies to "@scoop Well for me every day is alike. Same amount of sputum every day. My pulmo..."
@irenea8 Irene...I believe that I was living with a degree of BE without an infection for several years. I believe that it had reached a point in time that it was showing it's ugly head by my bringing up a small green substance (probably a mucus plug) every so often. With time it increased.
So just as it takes time, possibly, for BE/MAC to start showing its 'ugly head' and find it's way into us .......it may be the same with trying to reverse some of what we can reverse with medications????
We are all hoping and wishing for you, and each of us, what we want....improvement. Something we want desperately...This I know you know: "All good things come to those who wait." We sometimes just have to 'wait' and I know you know how to do that.
Thinking of You.
Barbara
@irenea8 for reference , I’m about to start month #6.
Mild BE, 10mg.
For me , the daily mucus and coughing has been significantly less, although some days it can still be substantial . For example , even the hint of rain always causes me to overproduce . That hasn’t changed. I don’t recall the decreased mucus being as early as the first weeks of Brinsupri , as others have mentioned . For me it took a little longer . In December I caught something that caused a flare . I did notice that I recovered much quicker from it . Usually I have to take Zithromax & a steroid dose pack . This time I didn’t need the steroid . Very encouraging , especially with Christmas . Give it more time , and don’t get discouraged by those that get the fast /immediate results with it.
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@irenea8 Think positively with patience!