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Ray Kemble avatar

Living with PN, do you find yourself retreating from life?

Neuropathy | Last Active: Mar 5 10:44am | Replies (144)

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@ray666
Quietriver: Good morning Ray. lad to hear you at leased took the time to see what your inatention was that caused the fall. Several years ago now my balance was so bad I couldn't turn without falling. I started with the eyes and ears. I took a couple pillows and threw on the floor incase I did a nose dive. Then went down onto my knees. Bent my body forward and started moving in a circle both ways, When I was able to do that I started moving and body in circles as I improve my balancr I started rolling my eyes and that inproved I started rolling the another direction that the head and the body in another direction that the head.I found my brain head, eyes and body just wasn't coordinated. It took a couple weeks to get everything to work in different directions. I started with 15 mine and went to 30. To help things along I started rolling my eyes while watching Tv. moving to things at different distances ad do it slow enought that the eyes focus on every thing. This is excelent training for the eyes on focusing diferent things faster as you change distances, It even helps you when driving as you will use your prefixal vision that is while looking streight ahead you are also becoming aware of everything that is coming from the side allowing you to look and decide if it is safe. To check your side vision I use one finger starting at the ear I find My side vision is just forward of my ear. and I pay attention to it. I learned to do that while training to be a Motorcycle Officer many years ago and it saved my life many times. So I still do it today when walking or driving. I don't ride much anymore but still enjoy it as it helps my balance but incase of a mistake the heeling is alot slower. enjoy brother Ray and keep building yourself up.

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Replies to "@ray666 Quietriver: Good morning Ray. lad to hear you at leased took the time to see..."

Hello, quietriver (@quietriver)

Thank you! You've presented me with a fabulous balance tutorial. I intend to print out and save your post. Not only do you offer specific practices, but the sum-total, the message of your post is Never Give Up! I find that so heartening. I need to have words like yours at the ready whenever so determination begins to sag––and sag it will do!

I first began to experience balance difficulties way, way back in the early 2010s, shortly after I retired. I'd not been diagnosed with anything then. I chalked my wobbly balance up to "getting older." I wasn't diagnosed with PN until the summer of 2023, only three years ago. Still, I was able to manage my less-than-perfect balance. I believe that was because my legs were still strong (thank to years of long-distance running).

But in the spring of 2024, I contracted a nasty sepsis infection, which left me mostly bed- and recliner-ridden for 14 months! It was those chiefly inactive 14 months that sapped my legs of all their strength. It's working to rebuild that lost strength that is my No. 1 exercise preoccupation these days––and oh my, oh my, what a long and tedious process this is! I am learning patience in a way I'd never learned it before.

I wish success well and everlasting determination in your work to keep yourself well, @quietriver.

Here's wishing you the very best!
Ray (@ray666)