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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Apr 13 6:46am | Replies (231)

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@bouf1948
My dr said it will almost always come back. He is the top doctor in the PNW and has written books and trained others. Pagets is such a rare disease. My primary care dr didn’t even know what it was. mine was made worse by my incontince. It just burned. I’m hoping that it doesn’t come back for awhile. My dr just retired and supposedly they have found a replacement for him but she isn’t as familiar with Pagets. So this could be interesting. Good luck with your surgery! Cold packs on the area help after surgery.

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Replies to "@bouf1948 My dr said it will almost always come back. He is the top doctor in..."

@foster14 did you can control your Paget’s with cream? Does it burn really badly? How long have you had Paget’s?