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Can anyone share their experience with Pluvicto?
Prostate Cancer | Last Active: May 6 2:18pm | Replies (269)Comment receiving replies
I started this journey 2 years ago and have had 6 rounds of chemo and have been on nebqua and lupron for this time. Now it seems it quit working so I am now taking once a day orgovyx, nubqua, and am going to start pluvicto next week. I know what chemo was like for a few days after a treatment, but wonder what to expect with an infusion of pluvicto every 6 weeks. Anyone had this treatment, and what to ecpect?
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Some people have some major side effects from Pluvicto, most don’t. I have heard at least 5 people talk about their experience, In some cases they had to have more time between doses because of the side effects.
I saw a webinar where they discussed a person who lit up the Pet scan With metastasis from head to Legs. He had one Pluvicto Treatment and it almost cleared his pet scan, But his side effects were so bad that he could not take any more treatments
Be aware that it works really well for 33% of people OK for 33% of people and not at all for 33% of people.
If you have certain genetic issues, either hereditary or somatic, it can affect how well Pluvicto Works. You can ask for a somatic test before doing Pluvicto To find out if you’ve got Genetic changes Due to the cancer.
If you have BRCA2 or ATM It seems to work better. If you have RB1, PTEN or TP53 They are Pluvicto resistant.
Here is a very long discussion from many people about their experience with Pluvicto
https://connect.mayoclinic.org/discussion/can-anyone-share-their-experience-with-pluvicto/