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Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: Apr 13 6:46am | Replies (231)Comment receiving replies
@bouf1948 Hello, Carole Ann and welcome to Mayo Clinic Connect and to our Gynecological Cancers support group. It looks like you've already received some good information from @foster14 and @ameliae. You've come to a good place to read about the experiences of others and to get support. You likely noticed that this particular discussion is quite long as it's an ongoing and active discussion with information from others including their own experiences.
It's good that a biopsy was done and so now you have better idea of what's happening. Do you know what your physician plans for the surgery they recommend? Some of the questions you've asked could be answered in a consulting appointment with your doctor. Also, if you are on the fence about surgery or type of surgery have you thought about getting another opinion from a different doctor? Getting another opinion is very common and many of us have done just that.
What other questions do you have?
Replies to "@bouf1948 Hello, Carole Ann and welcome to Mayo Clinic Connect and to our Gynecological Cancers support..."
@naturegirl5 I’m having surgery Monday 3/2 at 7:30 am to remove the cancer to a margin where it comes back no cancer. I’m kind of scared because I don’t know how invasive it is and the doctors don’t either at this point. I’ll spend the night in the hospital and then decide if I want/need to spend some time at my cousin’s house. I don’t know what to expect after surgery. One lady on here said she couldn’t function well for four weeks. The doctor estimated I’d have 30 stitches. Can anyone tell me if they’ve had similar circumstances.
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@naturegirl5 I’m so confused. I saw an oncologist/gynecologist Tuesday, and he wants to do surgery to remove the area March 2nd. He said he may have to also use a laser to get clear margins. He showed me pics of the area (which I hadn’t seen), and it’s a long swath going down close to the rectum. He wants me to spend the night in the hospital, since I also have leukemia and lymphoma, and a host of other problems. The hospital gets 2 stars. He was my second opinion. He’s a long way from my house, and it’s a teaching hospital, and I had to sign forms saying students may do some of the work. Okay, back to the first opinion, she is a mile from my house, no students helping, much better rated hospital - 4 stars. She is 34 years old, and she’s a gynecologist/oncologist, but I don’t think she’s ever seen this, even though she said she had. Can I get your opinion?