@louisejewell
I was on Libtayo for 9 months. Every 3 weeks.
It didn't see any decrease in lesions, stopped taking it!

@louisejewell I was on it for 28 months. The first year was every 3 weeks but as the tumors shrunk and disappeared it became every 6 weeks. I was having considerable difficulty with appetite and food just not tasting right and my oncologist recommended taking a break from it. As usual she was right, with side effects slowly improving and now almost 3 years off of it and still no visible tumor. I was very hesitant to start on this drug for fear of severe side effects, then after having success with it I did not want to stop, despite being tired and poor appetite. So far so good. New scans next month so fingers crossed.

@louisejewell just had my 7th out of 12 every 3 weeks