@mauiboy89
Are you having the high dose usually around 5 sessions or the low dose usual around 20-30 sessions?
If you are having high dose your side affects will show up sooner and by some feedback at a higher level that with low dose. I had 30 rounds of proton radiation and had no side affects for a month. Then started getting the more urge to urinate and higher number of times. But have to say was drinking a lot of water each day since had to drink 12 oz of water prior to each treatment.
Did you have the Space Oar? That is a gel inserted between colon and prostate that hardens between your prostate and colon. That helps move the colon away from the prostate to lesson radiation damage and irritation of to colon.
Did drink water prior to your treatments? That was to move your bladder away from prostate to lesson damage to in from radiation which can irritate it and cause it to be more reactive.
Don't hesitate to asked any question on MCC. There is no subject on MCC that is not to be asked as we have all been through this so nothing you can asked will shock us or something we have not already discussed. My R/O (UFHPTI) says they radiate the entire prostate and margins just to make sure they did not miss some cancer cells that biopsies and MRI did not see.
There is some discussion by some that their R/Os did not think the Space/Oar and drinking water is not needed then many R/Os like mine did think it helped reduce radiation inflammation to those organs and tissues.
Are you taking hormones? Those can affect you dramatically. I did not have them so can't directly comment on side affects from them but know I see posts about fatigue and other feelings.
I do know about half way through my 30 rounds I noticed a sun burn on both sides of my hips. I asked about it and said that is where proton beam enters and the radiation damages the skin just like a sunburn damage. So you can see the radiation does irritate anything it hits.
With proton radiation it enters body not at full dose but releases full dose at defined location and then stops and does not exit body like photon does. My sun burn stayed until my treatments stopped and then turn to a tan mark and then finally went away.
I did have increase urination, urgency went up, and slight fatigue. Now 2.5 years later have some dribbling problems but could be just old age (78) catching up. I do Kegel exercises but have learned to not wait so long to urinate if I feel the need to.
@jc76
I am half way through my 20 sessions of treatment. Urinating and keeping my bladder full has not been an issue.
I did have the Space Oar inserted prior to my treatment. I am still having problems with the amount of times I have to move my bowels and its consistency.
I have had a few accidents where fecal matter has leaked on to my Depends underwear. my R/O recommended I take Imodium AD.
I'll see how that works out.
Thanks for your comments. It was very helpful.