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Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: Apr 13 6:46am | Replies (231)Comment receiving replies
I have not used the cream. I was told it was just for areas that they couldn’t do surgery on. If you trust your dr he would know but if you’re concerned a 2nd opinion may make you feel better. I have had 4 surgeries, 1 about 5 yrs ago and then in the last two years I have had 3 more. The Pagets was behind my clitoris and kept coming back. I elected to have my clitoris removed with this last surgery cause I was tired of surgeries every 8 months. It does come back and my dr told me it will always come back. Hopefully this last surgery will last longer. I took the medicines they prescribed for the first three days then tapered off. I also made meals for the freezer that I could just heat up. Unless you have someone to cook for you!
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@foster14 the first doctor recommended surgery, followed up with cream. She said she had experience with this, but I don’t believe her. She’s very young and she told me twice it wasn’t cancer before the biopsy. I’m seeing a doctor Tuesday who does have experience. I got his name off of the Mayo Clinic list. I’m somewhat concerned about not being able to walk or drive after surgery. I don’t have someone to cook for me, so I will fill up my fridge or order meals online. I guess I’ll clean my house really good before surgery. The area involved is next to or on the labia, and it hurts sometimes a lot. It’s better when I try to keep it dry instead of using creams, like other doctors have prescribed. Hopefully, the dr Tuesday can tell if it’s invasive. I don’t know how they do that.
@foster14 how painful was the surgery? Did you need help afterwards? How long were you out of commission?
@foster14 did you spend the night in the hospital?
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@foster14 I live alone, so I think I’ll have some food handy or order in. I think I’ve about decided I don’t need a second opinion. I don’t find varied information on the treatment - just surgery beyond the margins and cream. Does it always come back for everyone? It must’ve been a very painful surgery for you - I’m very sorry. Will it still come back after your big surgery? What kind of doctor did your surgery? Will I be able to sit or walk or drive? They don’t know what causes it, do they?