@mmar2025: My PRRT was because the latest MRI showed 40% tumor progression from the 2021 diagnosis of well-differentiated, Grade1, Stage 4, KI67< 1% - primary small intestine with liver metastases. I researched and consulted with many before I chose PRRT Lutathera (Beta) treatment from June-December 2024. In Jan. 2025, my 1st MRI after PRRT it verified my NET tumors had significantly reduced in size and as of Jan. 2026 there is still further shrinkage. This radionuclide infusion therapy can affect Blood Platelets, so it is wise to watch blood labs heretofore. I will have Lanreotide 28-day shots for life. I also have had MRI w/wo Eovist contrast every 3 months to remain vigilant for tumor progression. Fatigue made my regular schedule difficult, so during treatment I made fighting cancer my main focus. When I tired easily, I would rest, read, meditate and had small light meals - best choices of good nutrition.
It’s now Feb. 2026 and the fatigue has slowly been replaced by my’ol schedule of meetings, yoga, TaiChi, cooking, crocheting, socializing, cards, etc. I am feeling more like the pre-cancer ME - even though there is no cure.
I am not well versed with Pancreatic NET, but make daily effort to research and discuss all NET treatments. NET tumors can reappear anywhere, anytime, so we will need to stay informed.
You will make the best treatment decision when you consult with NET specialists and peer patients.
Best of health to you..