@sjlatham I was in the same situation as you are. I am scheduled for seven clinical days at NJH starting Monday, 2/15/2026. I am going to be seen at Mass General Hospital in their BE MAC program in May and was thinking that I should just wait and join that program and was ready to cancel my trip to Denver. I talked to my current pulmonologist and he encouraged me to me to go to Denver. I like and respect him and thought he would be the more appropriate person to make the decision. (Rather than me). So I am going. We fly out Sunday as they like you to arrive a day before your first appointment and leave a day after your last appointment in case there are pending issues they want to cover. And yes, your visit will be split by a weekend so we are going to drive to Colorado Springs Friday and Saturday nights for a break. Other than time and expense, I can’t come up with a good reason not to go. Please let us know what you decide!

@sjlatham I was felt fine at diagnosis. My local doctors repeatedly told me I was “stable” (based on 4 CTs). I went to NJH, nope, progressive cavitary disease. Again, I felt totally fine. I have learned that feeling fine is not the whole story and having an accurate understanding of our conditions is imperative. I myself would not (and do not) rely on my local doctors for an accurate assessment of my NTM infection. I feel so strongly about this I self pay for my care at NJH, as I am part of an HMO that refuses to refer me out. So, in my opinion, I agree with the others, I would go. Also keep in mind you don't necessarily need to repeat testing you have already had done. Some testing, ie sweat test, is one and done, other testing needs to be updated from time to time (CTs, PFT). Because I am a self pay patient at NJH, I did all the necessary testing at my HMO while I was waiting for my first NJH appointment, to keep my out of pocket costs down. The only testing I did at NJH was sputum testing (because their lab gives more info). I had to do a lot of leg work to understand what needed to be done and push my local doctors to do it, but when I got to NJH they confirmed that there was no further testing they would recommend for me. I just got back from my 6 month check in at NJH and again the only testing I did there was sputum tests. I got an updated CT and PFT with my HMO before my NJH visit. I am not saying this is the best approach, I would much rather have the radiologists at NJH review my CTs, but only to say there is not one way to approach your time and investment at NJH, and to encourage you take initiative to approach the visit in a way that works best for you. But yes, I would go. As others have said, even if they confirm everything you think you already know, that would give me great peace of mind. But I suspect you will learn things you didn’t know about your circumstances, there is no dispute that NJH’s expertise in this area is top-notch.