@altabiznet Don't wait to find someone to take this seriously. We had an experience where the (new, young) primary doctor knew it was CIDP. We said it was getting worse, he said something on the order of " when you can't feed yourself, that's when I want to know." So we went home, and long story short, within a month or so, F couldn't feed himself, needed ventilation, was in line for a trach. We were lucky someone turned it around, largely because a family member insisted. It's a year later and progress is close to where it was previously.