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DiscussionCavernous malformation and seizure. Input on my dosage?
Epilepsy & Seizures | Last Active: Feb 23 4:55am | Replies (10)Comment receiving replies
Replies to "When it comes to seizures in the past it was only caused by a bleed but..."
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@tkmoyer3 Hi!
Thank you so much for sharing your journey—it really helps me understand what you've been navigating.
I'm curious: have any of your doctors mentioned Epidiolex (FDA-approved CBD)? It's shown some really promising results for people with refractory epilepsy.
Here's a recent post from Kerry, whose son has refractory epilepsy and has been doing really well on Epidiolex: https://connect.mayoclinic.org/comment/1502120/
I take pure CBD (Epidiolex isn't available in my country yet), and it's helped with my seizures with minimal side effects.
Chris
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