Go with local prostectomy surgeon or pursue big center 2.5 hours away
Hi everyone,
I need radical prostatectomy (Gleason 3+4=7, Stage IIB). The good news is that it is contained to the prostate with no spread.
I have a local urologist who has done 100 robotic nerve-sparing procedures (he also does kidney and other surgery). He was trained at a center and now does one or two prostatectomy surgeries a month.
Should I see if I can qualify for a large surgery center 2 1/2 hours away in Chicago at Northwestern?
My surgery time currently will likely be in two months. I'm guessing it will take time to be set up as a patient at the center and surgery might be delayed even more.
Are the benefits of a big center worth perhaps an even longer delay?
Just wondering everyone's thoughts? Thanks for your help!
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No question...no second thought...travel the 2.5 hours to the biggest and best medical center you can find. Your local urologist having done only "100" prostatectomies is still considered "rookie status", compared to other urologists who have done 4,000, 5,000, and more. I fortunately live in location of Orange County, CA where there are many urologists and many very good hospitals. My urologist had done 4,100 DaVinci Robotic-assisted Radical Prostatectomies. I figured he was a great choice. Everyone's prostate has its own characteristics, to include the near-vascular bundles that need to be preserved for urinary and sexual function. You want the urologist with the most experience doing that IMHO. Good luck.
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3 ReactionsStupid questions from a healthcare nube.
• How do I connect with the Northwestern team and get that started ?
> I'd want to also make sure their services fall into my insurance plan.
I so deeply appreciate all the super solid advice. I've been doing my homework in a big way and this forum is such a huge help. Appreciate you all!
@fritzo
Get started here
https://www.cancer.northwestern.edu/cancer-care/getting-started/index.html
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2 Reactions@kjacko
I'm in the Milwaukee area n yes, please tell me the Doctors name?
His name is Alex Zacharias. He’s with Aurora in Grafton(262-329-8100)where he performs the surgery(an excellent facility) and also has an office on Good Hope Road(414-352-3100). I live in Slinger and the drive to Grafton was well worth it. I still have followup appointments with him twice a year. Hope this is helpful
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1 Reaction@billfarm
Thank for the good advice! Yes, I saw my local urologist surgeon and he didn't want to influence me one way for the longest time between surgery or radiation, but I eventually got him to admit that for my case (63, overall good health) that surgery was what he would recommend. I met with the radiology oncologist and he definitely was selling radiation. For radiaiton, I'm comfortable staying local. But, I'm leaning toward surgery at this state.
@rlpostrp Yeah, I used to live near a bigger medical center than what we have here. So, it's challenging for sure. My urologist says I am a good candidate for nerve sparing, but it sounds like there are NO gurentees that they will actually be saved.
@retireditguy
So happy for you and your amazing outcome. From the forums and what I've seen online, it seems like you are the exception. I can only hope, but I suspect I won't be as fortunate based on what all I've seen online.
I actually decided to explore Northwestern when I started reading "Dr. Patrick Walsh's Guide to Surviving Prostate Cancer" and the co-author runs the program at NW.
Quick followup: What all did they have you do for your penile rehab program?
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1 ReactionMy penile rehab program was a low dose of 5mg daily cialis (generic), plus 100mg of viagra (generic) an hour before attempting sex (on an empty stomach to aide adsorption), and a vacuum pump for blood flow (although I was never able to use it effectively to prepare for sex). Shots would have been my next step, but the pills and pump worked. Since then I've read some doctors suggest the shots as part of the rehab, but I didn't read about that until after the point I no longer needed them. Make no mistake; it was very slow progress. I also exercised, ate well, and took vitamins, magnesium, and L-Citrulline. I don't know if the vitamins, magnesium, and L-Citrulline helped, but I think they did. I know the pills and vacuum pump helped. Plus I was lucky to have a very supportive wife who was very patient and supportive. Best wishes.
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1 ReactionThanks for that and so glad you progressed so well. I've heard that you can't do too many shots a week or risk of scarring goes way up, so I wonder how often they would prescribe that. I understand it's a slow process and sounds like really different for each person. Glad it worked out well for you!
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