@altabiznet Don't wait to find someone to take this seriously. We had an experience where the (new, young) primary doctor knew it was CIDP. We said it was getting worse, he said something on the order of " when you can't feed yourself, that's when I want to know." So we went home, and long story short, within a month or so, F couldn't feed himself, needed ventilation, was in line for a trach. We were lucky someone turned it around, largely because a family member insisted. It's a year later and progress is close to where it was previously.

@altabiznet feet started getting numb back in 2011 but not bad . 8-10 different doctors over the years had different ideas. There are 4-5 types of cidp and ever one
if different, I never was so bad i couldnt walk. Im 69 male
since 2022 ive tried ivig, rubxtex, steoroids. been on Vyvgart for about 15 weeks best my legs and feet have been in years. I only have numbness in feet and legs
no problem with hands.one of the biggest problems is cipd is so rare doctors are not aware . A lumbar punture should give results on cidp. anything else just ask, keep fighting