You're so welcome, @jemollica !
Thank you for sharing more about your son's situation—it really helps me understand what you're both going through. I'm truly sorry he's facing such a difficult time.
Has his doctors mentioned Epidiolex as a possibility? I'm tagging Kerry (@keeg1010), whose son also has treatment-resistant epilepsy and has seen excellent results since Mayo started him on Epidiolex. She may have some helpful insights to share.
Keeping both of you in my thoughts!
Chris