Connect
← Return to Is anyone taking Xcopri?
Discussion
Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)
Comment receiving replies
@santosha
Thank you for your kind words
He suffers daily intermittently through out the day from his internal brain seizure like sensations
He was diagnosed with focal seizures and is fully aware of his sensations as he was when he was experiencing the outward seizures
So far no relief has been found for him and for so many others as I read
I pray research will come up with a solution for all those suffering from these episodes which deliberate their quality of life
Replies to "@santosha Thank you for your kind words He suffers daily intermittently through out the day from..."
@jemollica thank you
Connect
You're so welcome, @jemollica !
Thank you for sharing more about your son's situation—it really helps me understand what you're both going through. I'm truly sorry he's facing such a difficult time.
Has his doctors mentioned Epidiolex as a possibility? I'm tagging Kerry (@keeg1010), whose son also has treatment-resistant epilepsy and has seen excellent results since Mayo started him on Epidiolex. She may have some helpful insights to share.
Keeping both of you in my thoughts!
Chris
View Translation