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DiscussionMy journey on Osteoporosis meds and now back issues ...
Osteoporosis & Bone Health | Last Active: Feb 13 10:29am | Replies (26)Comment receiving replies
Replies to "Exactly the same for me. No surgical repair of fractures in the spine because our bones..."
@eileenvan SOrry for your pain and struggles. Tymlos and Evenity do not work the same; although both are anabolic bone builders. I was on tymlos 2 years with similar side effects to yours. Overall I am healhty and have good diet. I had to restart at one click and gradualy increase to 8 over 3 months time. In that time, I managed the heart pounding with coconut water - 3-4 cups each day - and I continued this until about month 10 when those side effects lessened. At that time I got digestive stomach issues - but this is rare - and I managed these with digestive enzymes as my issue was a pancrease problem aggravated by PTH. Try not to dread the injections and just do what needs to be done.- this will help you feel in control and not get the tissues caught up in resistance.
I am now on evenity - and have no obesity diabetes or history of heart issues. I did dicsuss this side effect with DR. FOr me I needed support for coritcal bone ( tymlos and forteo work primarily on trabecular bone and can decrease cortcal strenght). It will be a year on Evenity in APril and i will then determine next steps. May you recieve the best supprot for your healht to recover fully.
@eileenvan have you considered getting fit for a custom back brace? I have a corset type brace that doesn't let move in the wrong direction. I wrap the brace around me as tight as I can and then on each side there is a knob, the knobs turn in opposite directions until I feel secure in the brace: the corset effect. I actually feel good in the corset, but my movement is seriously limited. It's spendy and pre-approval was required for me.
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@eileenvan I’m so glad to read you’re feeling stronger. That’s very encouraging.