← Return to Go with local prostectomy surgeon or pursue big center 2.5 hours away

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Profile picture for retireditguy @retireditguy

I think you're asking a good question. I'm not a medical professional nor an expert on this stuff, so take my comment with a grain of salt as I certainly don't know what's best for you. That said, I also had a 3+4=7 that appeared to be contained in the prostate. I was 70 when I had NS RARP in June 2024 at Mayo Phoenix, which was about a 5 hour drive from where I live. I made the drive because it's my personal opinion that it's a very difficult surgery and it just seemed logical to make the effort to find the best surgeon I could find to minimize the likelihood of a bad outcome. The surgeon I was assigned at Mayo turned out to be a long time surgeon (something like 20 years) at Mayo, he had a long list of published articles, and he had great reviews. During the consult I asked if he'd be doing the surgery, or some resident. He told me he'd be teaching during the surgery, but he'd be operating the robot and doing the surgery. I figured he must be pretty good if he's teaching at Mayo. I did ask him what he believed my odds, with him as surgeon, were for incontinence and ED. He told me at 1 year I had a 90% chance of being continent an 70% of not having ED. After surgery I was never incontinent (other than the normal accidents while figuring out the new normal) and at 15 months my ED is gone and I'm fully back to normal. I'm pretty sure a big part of my success was getting a great surgeon (and a good penal rehab program after surgery). So I think (generally speaking) that if someone has the option, then getting a very experienced and successful surgeon is worth the effort, but that's just my opinion. Although you didn't ask, I feel compelled to add that a CCOE like Northwestern would also be a great place to get a 2nd opinion on your specific case and all your treatment options. Expertise really matters when treating prostate cancer, and while I don't know for sure I've read that at Northwestern you'd have access to a multi-disciplinary team review of your case. If it's an option for you, it's possible a 2nd opinion could be done very quickly. Best wishes.

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@retireditguy
So happy for you and your amazing outcome. From the forums and what I've seen online, it seems like you are the exception. I can only hope, but I suspect I won't be as fortunate based on what all I've seen online.

I actually decided to explore Northwestern when I started reading "Dr. Patrick Walsh's Guide to Surviving Prostate Cancer" and the co-author runs the program at NW.

Quick followup: What all did they have you do for your penile rehab program?