@sarahlee2 yes - regular cannula for the Rituximab infusion. Bring something to do as I remember it being quite a long and boring infusion!
The uterine biopsy was done as part of my Tif-1 oncology screenings. I’m not sure why I was advised to get a uterine biopsy while you had a trans abdominal ultrasound - it could be our ages, with you being much younger at 30 and me already in menopause at 57? But I think there’s no harm in asking your doctor why “someone you know” with the same condition was counseled differently. It’s an valid question 🙂
With regard to avoiding people, again I’m not the right person to ask - I got Covid 5 times despite being vaccinated and boosted. I got DVT’s from Covid, and then I developed a mystery rash, lung nodules, more joint pain, and I was never the same. I stopped attending crowded places in the winter, declined invitations to weddings and parties unless they were in the summer months - not so much because the medicine made me immunocompromised, but more so because the repeated bouts of Covid made my symptoms more difficult to manage, so I just didn't want to risk going to big events where I’d be more likely to be exposed.
I still attend events in the spring, summer and early fall, but if I have to go anywhere at anytime of year where people are sick (like the doctor’s office, an urgent care center or the hospital), I wear an N95 mask to protect myself, wash my hands frequently and try to avoid touching my face. I get Covid infusions, called “Pemgarda,” every 90 days to try and mitigate the risk. My best advice is see how you go. If you’re doing okay on the meds and still able to go out and enjoy everything - don’t give up what you enjoy. If you start getting sick more often, try to find a balance. I am hoping that if I can resume IVIg, I will get everyone else’s immunity and eventually will not need the Pemgarda and can resume enjoying weddings and everything else during cold and flu season. A girl can hope!!🤞
@pm56
I unfortunately have tested positive for tuberculosis. 🙁 I think it might be latent, as my recent chest ct scan was clear. Really hoping I will still be able to get the Rituximab. Internet seems to be saying that it's okay to get Rituximab with latent TB as long as I take prophylactic antibiotics for it. Will see rheumatologist tomorrow to discuss it.