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Adult Acquired Tracheomalacia

Visiting Mayo Clinic | Last Active: Feb 19 6:41pm | Replies (9)

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Profile picture for heart4wi @heart4wi

I am so sorry that you are going through this. I had the same thing, and now have a tracheal stent. It was the Interventional Pulmonologists who inserted the stent.
I hope you are able to get some help. Are you near any of the smaller regional Mayo locations?

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Replies to "I am so sorry that you are going through this. I had the same thing, and..."

@heart4wi I'm happy to hear you got a partial solution. Are they just doing a stent trial before tracheobronchoplasty? I re-applied, and in my "condition" I stated I needed to see internventional pulmonology, added my muscle tension dysphonia that also came about from the same goiter surgery, requesting a laryngologist, and then in the "anything else you'd like us to know" is where I added the fact I can't have most medications, and that I would need their pharmacogenomic anesthesia team. Hopefully I get in this time because I specified the specialists, instead of just leaving it up to an intake clerk and Mayo's AI. I live in Minnesota, and Rochester is only 93 miles away. The clinics up in the Twin Cities are just that: clinics, like any other.