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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Mar 28 9:04am | Replies (1142)Comment receiving replies
Hello!
My name is Diane.
Just got a lung cancer diagnosis.
Still going through testing. Had bronchoscpy and will have PET and brain scan this week. Then on Friday willsee Dr for plan of attack.
It's all so overwhelming at this point.
Replies to "Hello! My name is Diane. Just got a lung cancer diagnosis. Still going through testing. Had..."
@dianelivingston47 I’m newly diagnosed too. I found the PET Scan to be helpful and I got more info from that than any doctor. Finally when I saw my primary doctor I asked her to confirm or deny my own interpretation of the results. It can be confusing so just saying don’t be afraid to make followup appts and ask for honest interpretations of those results. But also, I’m learning those results don’t have to define your life as next step is treatments. So its step-by-step in the process.
Welcome Diane, @dianelivingston47 , I’m sure your head is spinning and this point. It’s a tough diagnosis to wrap your head, and heart, around. Try to take one day at a time. Do you have someone that can go to appointments with you?, especially the oncology appointment?
Hello Diane, I am sorry for your recent diagnosis but know there are many advances treating lung cancer than before. My husband had extensive stage small cell lung cancer, which had spread to his liver and 3 vertebra. He just finished his 4th cycle of chemo and repeat scans. It still is not in his brain and gone off his vertebrae and only 2 very small areas less than a centimeter each on his liver and half the size in his lung. He is now doing immunotherapy only 1x every 28 days. He did fairly well on his chemo..only had a couple bouts of nausea and they gave him meds to curb that. He lost half his hair. His hairline is still intact but very thin and turned white. You didn’t mention what type of lung cancer you have but I just wanted to come in and tell you, there IS HOPE.
Thank you for coming in and whenever you feel like sharing more, there are people here who understand. God bless you on your journey.
@dianelivingston47, it's a whirlwind. How did your appointment with the doctor go? What are the next steps?
@dianelivingston47
It is stage 4 nsclc it has spread to numerous parts of my body, mostly bones but also to brain and other lung. Am on Tagrisso and will also have Zometa as soon as my dental work is done.
Have taken Tagrisso for a week and no side effects yet.
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@dianelivingston47