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Ray Kemble avatar

Living with PN, do you find yourself retreating from life?

Neuropathy | Last Active: Mar 5 10:44am | Replies (144)

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@xandermac This is just me, one person, but you sound exactly like I was before spinal fusion surgery in 2018. I had a 20 minute window to be on my feet, before excruciating pain. I’d go early to the grocery store on a week day, pull into the handicapped spot with my plan in mind, walk as quickly as I could to a few needed items, head to the self check-out, and be back at my car at the 20 minute mark and feel the excruciating pain start as I’d lower myself to the car seat.
I decided I couldn’t live like this. My mother, a smart BSN, RN, always said to have surgery at a major medical school teaching hospital- top surgeons, excellent infection control, lots of attention from residents and interns. I researched the spinal surgeons in the closest one to me, made an appointment with the head of the department (took 6 months to get in), went for the evaluation, testing, confirmed diagnosis of spinal stenosis, plan explained, went for the surgery. Full recovery from surgery took 3-4 weeks.
The surgery was totally successful- I have no back pain, no thigh pain, no leg pain. I do the PT home exercise program still, walk a mile and a half daily, do the exercise bike when there’s bad weather. I’m 73 years old.
People will want to tell you terrible stories of their husband’s sister-in-law’s cousin’s awful experience with surgery, but it gave me my life back.

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Replies to "@xandermac This is just me, one person, but you sound exactly like I was before spinal..."

@centre You are right on target ~ and congratulations! Mine was done in 2022 at the University of Iowa Hospitals and Clinics (a teaching hospital) and, like you, I was so fearful of an outcome not worth the drives, appointments, tests, pre-op yada yada but really I had no choice but to do it (decompression and fusion L-2 to the sacrum). After years of spinal injections, which became less and less effective over time, there was no other option.
I will say there is a chance that any neuropathy that a person already has may progress post-surgery. Mine did, and I'd had it for at least 20 years before the operation. But still, the back pain before the surgery was worse than the neuropathy pain (feet, hands) that I have now, thanks to my pain doctor and neurologist working with me to fine-tune a treatment plan.
Blessings and peace to you,
Barb