@blm1007blm1007 I absolutely agree with you! When I first started this journey in 2017, I was told that my sputum cultures were gonna take at least six weeks because that’s how long it took to properly culture them and watch them grow. Now they send them to some lab downtown and they’re back the next day! What is that?! I believe my infectious disease doctor has gotten very sloppy and I do not appreciate her lackadaisical attitude. And then the opposition between her and the pulmonologists, it’s just ridiculous that we as patients are supposed to figure this out as to who knows what’s right? I personally have had enough and this is why I’m going to NJH.
Initially, my PCP was absolutely wonderful! He was on top of it every minute of the day. He had me do a culture at least every three months, a CT scan every three months come to see him every two months, he was on top of it. Since then I’ve had to really advocate for myself.
Thank you so much for reaching out! I wish you all the luck in the world and I’m so glad at NJH. Which campus are you going to?