Connect
← Return to Kevzara (sarilumab) to treat PMR
Discussion
Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Feb 10 7:53am | Replies (187)Comment receiving replies
It is all about being and staying hopeful.
When Actemra was offered to me, I was discouraged about trying it by so-called experts on the internet who said they were entitled to know how to treat PMR. Their entitlement stemmed from being on Prednisone for many years without being able to taper off. They were promoting elaborate tapering methods because they knew the best way to taper off Prednisone even though they could not taper off.
I was discouraged from taking Actemra because of one person who said it would be okay to take Prednisone for the rest of my life. I don't think it is wrong to take Prednisone forever but I don't think anyone should be discouraged from trying some alternatives,
Replies to "@elleninz It is all about being and staying hopeful. When Actemra was offered to me, I..."
Connect
@dadcue
Hi , I agree. The mental attitude is key. A bit nervous when I read the side effects. But I feel that I can’t do prednisone forever. I have tried at least three time to get to 3 mg. Everytime something comes up. So now that it shows up as GCA in aorta , it’s must be addressed. When I first got diagnosed in May 2023 , I was told to go on Kevzara. But I couldn’t pull the trigger So. Here I am. Thank you for your input.
Ellen DeFrancesco