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← Return to Kevzara (sarilumab) to treat PMR
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Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Feb 10 7:53am | Replies (187)Comment receiving replies
@dadcue
Hi. Thank you for the information and links. Just went to rheumatologist on Friday, she is putting in the orders for Actemera as I show GCA on the aorta . We will see. Very hopeful.
Ellen D
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@elleninz
It is all about being and staying hopeful.
When Actemra was offered to me, I was discouraged about trying it by so-called experts on the internet who said they were entitled to know how to treat PMR. Their entitlement stemmed from being on Prednisone for many years without being able to taper off. They were promoting elaborate tapering methods because they knew the best way to taper off Prednisone even though they could not taper off.
I was discouraged from taking Actemra because of one person who said it would be okay to take Prednisone for the rest of my life. I don't think it is wrong to take Prednisone forever but I don't think anyone should be discouraged from trying some alternatives,