Connect
← Return to Sputum Test submissions and outcome results
Discussion
Sputum Test submissions and outcome results
MAC & Bronchiectasis | Last Active: Feb 26 7:09pm | Replies (81)Comment receiving replies
@toni4501 I believe that what you have said and due to my own experience with the local pulmonologist in OKC and the lab used by the local pulmonologist causes me to believe, that in the big picture it would be best for all who are told they have BE, they should be sure the lab that the pulmonologist sends the sputum to is as good as the NJH or Tyler labs. I am not familiar with the Mayo lab in terms of it compared to NJH or Tyler.
Glad you are going to try and get into NJH. I should have gone sooner to NJH but I had put off making the appointment with NJH for approximately 1 year from the time the local PCP ordered the CScan to say 'You have BE." It was at NJH that I found out I was walking around with an infection in my lungs, MAI. Thankfully is was found to be at a low load and only one bacteria in me.
Barbara
Replies to "@toni4501 I believe that what you have said and due to my own experience with the..."
Connect
@blm1007blm1007 I absolutely agree with you! When I first started this journey in 2017, I was told that my sputum cultures were gonna take at least six weeks because that’s how long it took to properly culture them and watch them grow. Now they send them to some lab downtown and they’re back the next day! What is that?! I believe my infectious disease doctor has gotten very sloppy and I do not appreciate her lackadaisical attitude. And then the opposition between her and the pulmonologists, it’s just ridiculous that we as patients are supposed to figure this out as to who knows what’s right? I personally have had enough and this is why I’m going to NJH.
Initially, my PCP was absolutely wonderful! He was on top of it every minute of the day. He had me do a culture at least every three months, a CT scan every three months come to see him every two months, he was on top of it. Since then I’ve had to really advocate for myself.
Thank you so much for reaching out! I wish you all the luck in the world and I’m so glad at NJH. Which campus are you going to?