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lynn0225 avatar

Is anyone taking Xcopri?

Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@bearbayou
Thank you for sharing more details about your son's situation. After reading this last post of yours, I had another thought I wanted to share with you.
Low sodium is a well-known seizure trigger – one that both your son and I have dealt with. So I'm wondering if the LMNT and homemade rehydration solution you've been giving him might be another piece of his improvement puzzle. The increase in his sodium levels might have also contributed to fewer seizures, which in turn could be helping his cognitive improvement and vocabulary.
Have you perhaps noticed fewer seizures since you started giving him the LMNT and homemade rehydration solutions?
I wanted to share this thought while it's fresh in my mind. I'll respond more fully to your post on Monday!
Have a lovely Sunday!
Chris

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Replies to "@bearbayou Thank you for sharing more details about your son's situation. After reading this last post..."

@bearbayou Good morning!
What beautiful progress you're both seeing!
The fact that your son is becoming more self-aware and taking action to manage his focal seizures (such as leaving the grocery store to sit in the car) is really significant. That kind of self-awareness and self-advocacy is so valuable!
And that moment with him putting his hand on your shoulder and asking about your computer habit? What a gift that he's experiencing this level of clarity and connection. I love that it inspired you to pick up that book!
About the diary: don't be hard on yourself for going slack! You were managing so many things at the same time. I'm very happy to hear that the letter you and your son wrote to the Nurse Practitioner was so helpful. This shows how both the NP and the neurologist are open to partnership, something I value tremendously with my current neurologist.
Please keep me posted on how things continue!
Chris