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Cavernous malformation and seizure. Input on my dosage?
Epilepsy & Seizures | Last Active: Feb 23 4:55am | Replies (10)Comment receiving replies
@santosha
Thank you ☺️ No I haven’t had another seizure. It takes me half the first part of my day in feeling better since yesterday for the first time. My balance is still unsteady, speech is improving but slow & talking to anyone is too much on me. My head and eyes gets a lot of pressure. Right along with it feeling like everything is spinning. What concerns my husband is that when I came home from surgery I was fine but after that seizure I’m not. He’s concerned to what happened. For me in the past after a seizure I would be very sore and tired. But this time is different because the seizure that happened in Nov 2025 didn’t affect me like the past. In fact my brother didn’t know what to think about that as to why I didn’t have the usual symptoms. But I didn’t but after this surgery then seizure I do have those symptoms as would be expected but it is concerning for me because of my remembrance at the beginning of going into it and then blacking out. So that has been a bit different. Whereas in the past I would simply just blackout.
Replies to "@santosha Thank you ☺️ No I haven’t had another seizure. It takes me half the first..."
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@tkmoyer3
My pleasure! I'm so glad to hear you haven't had another seizure 🙏.
These symptoms you're experiencing might be related to the high dosage of Keppra you're taking. You mentioned you're seeing a new neurologist next week, right? Here's what I'd suggest: keep a daily diary this week, noting how you're feeling throughout each day, and bring that to share with the neurologist. It can really help the doctor see patterns and understand what you're going through.
About the changes in your seizure pattern since November, I'm wondering whether you experienced an aura before that tonic-clonic seizure. Seizures can definitely change over time and also due to medications and medical procedures. In my own experience, I used to have longer, clearer auras before my focal impaired awareness seizures (formerly called complex partial seizures), but now my auras are much shorter and lead almost immediately into a focal impaired awareness seizure.
Do you believe you had an aura before your tonic-clonic seizure in November 2025? Can you remember what you felt before blacking out? And did you notice similar warning signs before the seizure in January this year?
Keeping my fingers crossed for you—please keep me updated!
Chris
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