← Return to Crohn's disease and bad flare up

Discussion
tia8marie avatar

Crohn's disease and bad flare up

Digestive Health | Last Active: Feb 9 3:30pm | Replies (11)

Comment receiving replies
Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @crisshado1, welcome to Mayo Clinic Connect! You must be scared and exhausted dealing with what you now know is sever ulcers in your colon. I am glad to see you are connecting with others as you work through what is next. You can do this!

You mention a concern after being at Mayo and starting six weeks of steroids with being comfortable not actually in the hospital. I do not have your condition nor a medical degree, and other members can tell you about their inpatient experiences.

As you wait for others to respond I want to set your mind at ease about being an outpatient. I can tell you as a patient at Mayo Clinic I typically get very clear instructions to take with me, including what to do/who to contact if specific things were to happen. My experience has been they are extremely concerned that I understand the instructions and that I should call with any questions. They do expect to hear from you if you need reassurance about anything.

How are you feeling? Do you have contact information to contact your care team at Mayo Clinic?

Jump to this post


Replies to "Hi @crisshado1, welcome to Mayo Clinic Connect! You must be scared and exhausted dealing with what..."

@jlharsh my doctor that I saw the gastroenterologist has only been at the Jacksonville clinic for four months and they don’t think he has a good grasp yet and how things exactly work administratively so no I did not get clear instructions about what to do or who to call and I feel very ill at ease I’m still sick