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Ray Kemble avatar

Living with PN, do you find yourself retreating from life?

Neuropathy | Last Active: Mar 5 10:44am | Replies (144)

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Profile picture for patriciaschulz1950 @patriciaschulz1950

Hi ! I haven’t posted in a while. Yes to your answer- constantly not going because of pain and balance - mostly depression from the pain and not finding anything to combat or ease it so I can enjoy a day or evening out.
My advice to anyone lately is if you have symptoms, start early to resolve and live in a city that has a Mayo Clinic or Teaching Hospital that has trials and research - someone /some group that can empathize with you. Chronic pain / idiopathic neuropathy not good combination. They feed each other.

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Replies to "Hi ! I haven’t posted in a while. Yes to your answer- constantly not going because..."

@patriciaschulz1950 I am in the same boat…. can’t walk more than 15-20feet without having to sit. And can’t sit more than 20 minutes without getting up and stretching the pain out. Have severely restricted outings and miss them. MD’s say I have stenosis compromising the sciatic nerve. They want to fuse spinal bones. From what I read that does not work very well and leads to further surgeries. Too afraid to do it.