← Return to Cavernous malformation and seizure. Input on my dosage?

Discussion
Comment receiving replies
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @tkmoyer3 !
Welcome to our group at Mayo Clinic Connect! I'm glad you found us, and I hope you'll find the support you're looking for here.
I'm so sorry for everything you've been through over all these years – I really admire your resilience and strength through such a difficult journey!
I'm really glad your husband advocated for you by calling the surgeon's office instead of sending you back to the ER after that post-hospital seizure. Have you had any other seizures since this last Keppra dosage increase?
I'm tagging @emaputric who has focal cortical dysplasia, a congenital brain malformation, and might be able to offer some insight based on her experience.
Sending strength your way and wishing you a good appointment with that new neurologist! 🙏🙌
Chris

Jump to this post


Replies to "Hi @tkmoyer3 ! Welcome to our group at Mayo Clinic Connect! I'm glad you found us,..."

@santosha
Thank you ☺️ No I haven’t had another seizure. It takes me half the first part of my day in feeling better since yesterday for the first time. My balance is still unsteady, speech is improving but slow & talking to anyone is too much on me. My head and eyes gets a lot of pressure. Right along with it feeling like everything is spinning. What concerns my husband is that when I came home from surgery I was fine but after that seizure I’m not. He’s concerned to what happened. For me in the past after a seizure I would be very sore and tired. But this time is different because the seizure that happened in Nov 2025 didn’t affect me like the past. In fact my brother didn’t know what to think about that as to why I didn’t have the usual symptoms. But I didn’t but after this surgery then seizure I do have those symptoms as would be expected but it is concerning for me because of my remembrance at the beginning of going into it and then blacking out. So that has been a bit different. Whereas in the past I would simply just blackout.