← Return to Throwing money away: Balancing between autonomy & watchfulness

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Profile picture for captainoftheship @captainoftheship

@pdraayer thank you for sharing and validating that it is a hard fine line to walk between independence, dignity and protecting finances, The disease is brutal. My husband can't separate out the disease and who he is and self deprecates when he sees me take responsibility. It's hard for me to sort out what he can't and can do as the disease is fickle at best until each day I get a wow which feels like a gut punch and I say to myself, Really? And then I tighten the reigns to keep him safe as well as our finances. Driving is being addressed now too. He is able bodied and scores moderate to severe with cognitive decline on the Global Dementia scale. It feels like there is no "us" anymore. I have so much decision fatigue. This little tome here feels like a journal entry, a safe place for me to feel seen and for me to see myself. Thank you for seeing me here.

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Replies to "@pdraayer thank you for sharing and validating that it is a hard fine line to walk..."

@captainoftheship I'm sorry, it sounds like you're having a really bad day. There are too many trials and tribulations that pop up in our surprise life. Ugh, the self deprecation is horrible, just makes you feel crapier about everything you're going through and more alone, again. I'm feeling the no more "us", as well. Decision fatigue is a good description of one of the many issues, and it's not just the decisions, H doesn't think about the many little things he used to do for you that you just have the take a breath and do yourself now. adding to the overall load.
You are seen. Aren't we all lucky about one thing, we understand each other and always have this place to unload.