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Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)
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Replies to "Hi Chris My son had emergency surgery in 2016 for a intraventricle central Neurocytoma of a..."
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@jemollica Good morning!
I'm so sorry for everything you and your son have been through over the years.
I'm glad to hear he's no longer having the outward tonic-clonic seizures. I'm wondering if these "inward seizures" you mentioned are focal seizures? Even though they're internal, they can be very painful. Most of my seizures are focal ones, and some can be quite intense. After my J&J COVID shot, I had continuous focal seizures for 10 days and was completely exhausted. So I have some understanding of the pain he's experiencing 😓.
Does your son stay aware during these seizures, or is his awareness impacted? How many of these inward seizures is he having on average each day? Did his doctors explain what type of seizure these are?
Sending you and your son much strength! Crossing my fingers that his doctors will soon find a way to reduce these inward seizures 🙏🙌.
Chris
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