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Evenity and breast cancer recurrence
Osteoporosis & Bone Health | Last Active: Feb 20 8:03am | Replies (23)Comment receiving replies
@kathleen1314
Thank you for your informative response. Now I am even more concerned! I have been going back and forth on my decision to stop the last three injections. If I had read the information on this site, I never would have started Evenity. I have lost my balance, and my risk of falling and breaking my back or hip is pretty high. My bone density improved taking Calcitonin, and having PT for my back. Susan Ott recommended Calcitonin over these new drugs, I should have not given in to the pressure from endocrinologist and orthopedic surgeon.
Replies to "@kathleen1314 Thank you for your informative response. Now I am even more concerned! I have been..."
@nwhiker. I'm sorry to hear that you feel you made a poor choice treating osteoporosis with Evenity based on information from your endocrinologist and orthopedic surgeon. Keep in mind they both agreed on this course of treatment based on 1. their medical training and experience and 2. your specific patient history and medical needs, including benefits and risk of fracture.
Please know that they have your best interest in mind. Here's some helpful and encouraging information from Mayo Clinic:
- Osteoporosis treatment: Medications can help https://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/osteoporosis-treatment/art-20046869
I suggest using the information shared by fellow members to discuss with your specialists so that you can be confident in your care. Lifestyle approaches like working with a PT really help. However, sometimes lifestyle approaches alone are not enough. Luckily there are medications that can help.
Breaking a hip or your back is something you want to avoid, right? I love my PT and, when remaining consistent, I see improvements overtime. What kind of exercises do you like from your PT? Are you able to do the exercises regularly at home?
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@nwhiker
well, remember this is not a "normal" side effect nor a well known or studied one. Your chances are low if even existent.
Plus, remember that Dr. Ott has expressed a concern based on some research which I shared with you. I know of no population study of Evenity patients which show this. I was trying to explain Dr. Ott's position and research which she used and correcting your concern over breast cancer since that was not what Dr.Otto was referring to but bone metastastes.
I do suffer from the one in a million side effect, frequently (a genetic proclivity), and I have gotten so I run most things past copilot.
I have preloaded most of my medical history which is pertinent ( not dangerous if there is a data breech), plus all my supplements and my few drugs, basically what you give to a new doctor or update every year with your family doctor. I have asked copilot to always bear this information in mind when evaluating any new drug or supplement for me.
This works wonderfully for me, but may not for others. Copilot can look at all the research and standard practices at a few minutes notice which would take me months if not years to evaluate. Ai is not always right though, and I have had to ask why it is ignoring some research. Also different AIs are programmed differently, such as, AI google. Ai google prioritizes standard practice over any current research or break thru medicine. Copilot told me that, ha. So be careful.
Running new drugs/supplements thru copilot plus doing my own research gives me some peace of mind and helps with my decision making.
We all have to make quality of life decisons vs quantity of life decisions, and it becomes more complicated as we age.
You have done nothing wrong and have not made a bad decision. You may make a different decision going forward, but this will be made with your good research and your doctor's input.