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First Pluvicto Infusion Soon: What can I expect?
My husband will be getting his first Pluvicto infusion in October. I am trying to obtain as much information as possible so I am able to help him along this long journey.
I appreciate reading the comments about the radiation exposure. Needless to say my anxiety level is at the top of the scale. My main concern right now, though, is how to carry on with our lives between the fusions, knowing that thebimmunity system will be low because of the treatment. The pandemic forced me into more self isolation than I needed and I want to have us live our life between infusions rather than to take extreme precautions because of the low immunity. So, I am interested in hearing how you handle those weeks. I know everyone’s experience is different, but if he feels well and lab tests are ok, what kind of “normalcy” can we expect? What do you do between infusion appointments “
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Good friend started PLUVICTO. Looking for experiences from others concerning this treatment.
Regards,
Sagan
Some people have some major side effects from Pluvicto, most don’t. I have heard at least 5 people talk about their experience, In some cases they had to have more time between doses because of the side effects.
I saw a webinar where they discussed a person who lit up the Pet scan With metastasis from head to Legs. He had one Pluvicto Treatment and it almost cleared his pet scan, But his side effects were so bad that he could not take any more treatments
Be aware that it works really well for 33% of people OK for 33% of people and not at all for 33% of people.
If you have certain genetic issues, either hereditary or somatic, it can affect how well Pluvicto Works. You can ask for a somatic test before doing Pluvicto To find out if you’ve got Genetic changes Due to the cancer.
If you have BRCA2 or ATM It seems to work better. If you have RB1, PTEN or TP53 They are Pluvicto resistant.
https://connect.mayoclinic.org/comment/1380711/
The guy who runs the reluctant brotherhood advanced prostate cancer forum had Pluvicto a few months ago. He’s had prostate cancer for 12 years and almost every treatment, including chemo. After two Pluvicto treatments, his PSA went to .05. He’s holding off any more treatments until his PSA starts to rise.
You just never know how successful it will be.
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3 Reactions@jeffmarc
Jeff,
Thank you very much for your thoughtful and detailed discussion regarding Pluvicto. I have passed this on to my dear friend and he is very grateful. I'm also sure that others will benefit from your post.
Regards,
Sagan
@saganjames, I moved your question to this discussion where you'll find many helpful tips.
- First Pluvicto Infusion Soon: What can I expect?https://connect.mayoclinic.org/discussion/first-pluvicto-infusion-soon/
See all related discussions: https://connect.mayoclinic.org/group/prostate-cancer/
@colleenyoung Many thanks for your kind help.