← Return to Is anyone taking Xcopri?

Discussion
lynn0225 avatar

Is anyone taking Xcopri?

Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)

Comment receiving replies
Profile picture for bearbayou @bearbayou

@santosha -- good morning--
To answer your questions-- which are great ones because they ask me to notice more.
1. is my son still experiencing focal seizures? yes, they seem to happen, but not as many and -- he's become more attentive to "them" -- sometimes he'll seek out a quiet place (leave grocery store & sit in car), not go to a social setting, etc... where before he kinda just went alone with whatever.---thus, he seems more self-aware (physically and mentally/emotionally).
2. Trileptal --now takes 25 mg LESS daily.... it'll be a slow process, thankfully.
3. When Xcopri levels and vocabulary increase, etc:
I started noticing at 150 mg that his vocabulary was increasing..also, of all things, his inner wisdom. Yesterday, gently, he put his hand on my shoulder and said "Mom, why do you begin the day by getting on the computer? " I'm aware of this habit, but having it come from him---well, this morning began with my opening a book I've meant to read for weeks.
--About your keeping a dairy: I've been doing that for my son --at wise suggestion of his neurologist.-- now I realize I've gone slack in this regard--...yet ---just yesterday, for 1st time ever we had a 'letter' addressed to son's Nurse Practitioner (NP)--- son & I had worked on this together. Points were re: what's improved, what concerns he has, and help he needs
(NP) nurse practitioner told me 3 different times that the 'letter' was 'very helpful.'

Jump to this post


Replies to "@santosha -- good morning-- To answer your questions-- which are great ones because they ask me..."

@bearbayou
Thank you for sharing more details about your son's situation. After reading this last post of yours, I had another thought I wanted to share with you.
Low sodium is a well-known seizure trigger – one that both your son and I have dealt with. So I'm wondering if the LMNT and homemade rehydration solution you've been giving him might be another piece of his improvement puzzle. The increase in his sodium levels might have also contributed to fewer seizures, which in turn could be helping his cognitive improvement and vocabulary.
Have you perhaps noticed fewer seizures since you started giving him the LMNT and homemade rehydration solutions?
I wanted to share this thought while it's fresh in my mind. I'll respond more fully to your post on Monday!
Have a lovely Sunday!
Chris