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I saw the surgeon. More confused than ever.
Neuroendocrine Tumors (NETs) | Last Active: Feb 10 8:26am | Replies (53)Comment receiving replies
Wow, there are many comments here that actually don't pertain to my post. But I will update regardless.
Much has not happened since my post. I've had many tests but nothing conclusive. Every result is different. My Confidence is almost nil.
A ct 6 months ago showed a lesion in the small bowel. Ive been on lanreotide all that time. A recent ct showed changes and now there is bowel wall thickening. I'm due for an ercp to remove hepatic duct stones. I have gastritis, and an EUS showed a 1cm nodule in the tail of my pancreas. The CT showed a lesion in my decending colon as well. I'm disheartened because every test shows something different or new. And yet, not treatment. I am unsure of any treatment or plan. Surgery has been hanging over my head for 6 months with no answers. I'm getting depressed and feel like saying *!*@% it. There is very little communication nothing about this seems right.
Replies to "Wow, there are many comments here that actually don't pertain to my post. But I will..."
@carver1164
I'm sorry you haven't received more relevant responses. That can be frustrating sometimes.
Are you seeing a net specialist? That is always strongly recommended and will help you in hopefully feeling more confident in any action plan.
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@carver1164 It can certainly get frustrating. I'm in the same boat as far as tests and interpretations. I suspect these healthcare professionals are simply seeing your results differently and therefore interpret in a different way. Every CT, PET, MRI I've had has been reviewed, analyzed, and then summarized by a different Radiologist, Surgical Oncologist, etc. In the summaries they point out different things in those scans. Tumor sizes change of course, but I have a 18mm kidney stone that's mentioned sometimes. Possibility of fatty liver disease mentioned once. Spinal column wear and tear mentioned once. I've had 10 scans at least so you get the idea. Your condition isn't coming and going, it's the interpretation that changes.
Now as far as when to do surgery, I would not suggest being in a hurry to do something. There are always risks and possibilities that you might not be aware of. Good luck to you.