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Anyone here with Anti-TIF-1γ Antibody-Positive Dermatomyositis?
Autoimmune Diseases | Last Active: Feb 16 2:16pm | Replies (27)Comment receiving replies
@pm56
Thanks for the encouragement; I really appreciate it. 🙂 It sounds like you have had a rough run of things. I really hope you get some relief soon and can be well.
I saw the rheumatologist again yesterday; she said that right now the plan is to start steroids and do two infusions of Rituximab. After that I will start methotrexate and then hopefully will stops taking steroids. They will also repeat some of the oncology blood work again in two months. Waiting for the result of my tuberculosis test before starting Rituximab (I'm American, but I live in Pakistan, and so tuberculosis is a bit more common here). Hoping that the planned treatment won't make me too immunocompromised or sick.
Replies to "@pm56 Thanks for the encouragement; I really appreciate it. :) It sounds like you have had..."
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@sarahlee2 it’s a common protocol to do the TB testing before starting a new biologic drug. I’ve had to do it here as well (I’m from the UK but living in the US). They make me do it every time I switch to a new biologic too.
I didn’t have any serious issues with Rituximab, so I’m keeping my fingers crossed for no side effects for you either. If I remember correctly, I did my loading doses and then switched to every 6 months. Hoping you have no issues with the MTX either. Just don’t forget to take the folate with it as it helps tremendously with the side effects. Wishing you the very best with the upcoming treatment 😊